Day 9

Here is B's update for today:
So last night was a little busy. We had problems with a leaking catheter, bladder spasms, and an upset tummy. This morning(6:00) a urologist came in and irrigated the catheter and everything was running good. By 9:00 we were irrigating it again, it didn’t work so well so we are waiting on urology again but they probably won’t get here until later this evening. This morning her WBC is 5.2, and her platelet count is 17, so she will be getting more platelets today. They are now going to check her platelets every 8 hours instead of every 12 since she is still losing so much blood in her urine. She is hanging in there, tired of all the issues that keep showing up but doing ok. Not sure what else is going to go on today. I know they are looking into other things to help her bladder heal but not sure what they are going to do.

Day 10

This morning was an early wake up for Mom and B. They had dialysis at 5:45 am. Gotta love those early starts to the day! Mom was only able to get out of her bed and into the wheelchair. They are trying to figure out why she is so weak. This is frustrating to her because she wants to walk, walk, walk. Well, that is all for today.

PS: Mom still enjoys hearing your comments!!

Day 11

Not much to report today. Mom was real tired today so they gave her more platelets and have changed at what number she gets more. She was able to walk some and to wheel herself around in her wheelchair. These are some pictures from last week when I stayed with her.

Day 12

I just got off of the phone with Mom and she sounded really good. She said that they had a pretty lazy day, mainly just watched tv and napped. So, I am thinking that no news is good news!

Hope everyone has a great week.

Day 13

Talked to Dad this evening and he said that they had a pretty uneventful day. Mom had dialysis this afternoon and although they don't have a schedule no, she will have it when she needs it. She slept good last night and seemed to be in good spirits today. I think that she and Dad are glad that they don't have to go outside in this weather and do any work!



If you get the chance you can still send cards, call or go visit. I know she enjoys all of these things!

Day 14

Well, today Mom gave up another piece of equipment; they took out the catheter she had in her thigh they had been using for dialysis and photopheresis. Yeah! Mom and Rae are having a sleepover tonight and Dad is going to hang out at the apartment. Since receiving the news that she had to stay longer, Mom's chin is dragging the ground a little bit (as are the rest of ours). She wasn't able to walk any today but she wheeled herself in the wheelchair over 300 feet. AND she had non family company today. . . .a dear friend from home surprised them today and they had a great visit.

Well, that is it for tonight. We are trying to keep warm and that is taking some work!!

Day 15

Mom had a good day again today. She was able to get up and walk and push herself in her wheelchair and she said that she was pooped when she was done. They also took out the catheter she had in her leg. I am sure that she was very happy to lose one more piece of equipment!!
We have all been kind of excited because Mom was supposed to be "released" from H-town on the 21st of this month. We have ask several times if the date was going to be moved back and they kept telling us that the date has not changed. Well, Dad ask again yesterday because we were two weeks away and they told him that she will not be released to come home for AT LEAST another month. She will be going to in patient rehab at some point and depending on how well that goes, she could be released to go to the apartment but won't be home for another month. SO, needless to say, I am super bummed and I am sure that the rest of the family is feeling the same way. I guess this means that you will have to keep hearing from me on a daily basis.
Hope you enjoy the change in the weather. It is very cold at our house!