Wednesday, December 2, 2009

Day 51

I really don't know what to say about today. Today I felt like a failure as a caregiver. Mom became very upset with me, the occupational therapist and the nurse this morning because she didn't want to get out of bed although I think deep down inside she knew that she really needed to. She has slept almost all day long so I am afraid that we are going to have another sleepless night. Tomorrow she has to see the speech therapist, have her photopheresis and a swallow test. I have to go to a discharge class (1.5 hours. .yuck). Please continue to keep Mom in your prayers. Although she improves in little bits and not leaps and bounds, she doesn't think that she is getting better. She is struggling.

I got confirmation today that she does have pneumonia but she is not having any respiratory problems which is good.

Goodnight.

1 comments:

Mrs. H. said...

You are NOT a failure as a caregiver. You are the best kind of caregiver - the kind that is there on the good days and the hard days and the kind that is doing her very best and is persevering through a very trying time! Your mom has been through so much and it is only natural that she would be tired, frustrated and not wanting to always cooperate. It takes so much patience to be a caregiver - especially giving that care away from home and your daily comforts. And you are doing it! You and your family have been amazingly strong and courageous.
Praying that y'all slept better last night than you thought you would and that today is a better day for you both. One day at a time - you're almost in the 40's now. Y'all are one day closer today than yesterday to coming home! :-)