New Year's Eve was spent doing dialysis and photopheresis which takes up about 10 hours of the day if you count transport and wait time. When they mess up the schedule and have Mom doing both of these things on the same day it is so hard for her to eat like she needs to. That is one of the most frustrating things these days. They are always. . . EAT, EAT, EAT so you order your food and then they make you leave it and go do something. I know one day this week it 24 hours between meals for Mom. Makes me want to growl at someone. Anyway, they have spent the evening talking to us on the phone and watching WILD HOGS (D and I were too so it was kind of like being together!). No physical therapy or anything until next week since everyone is off again for the holiday. We hope everyone has a good night and a safe night.
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