Day 53

This morning started very early and we didn't finish until 9 this evening. The occupational therapist was here at 7:40 this morning and Mom was not, I repeat, not ready to start because we were awaken by the therapist AND we did not get much sleep during the night. The blisters and sores from the gvhd are very sore and when they are on your front, back and sides, it is hard to get comfortable. Every time they move her, it hurts. Anyway, that is how the day started and then she had a chest x-ray and while I was eating breakfast they came in to replace her catheter (in her clavicle) because it had slipped (I didn't get to finish breakfast :(), then wound care, photophersis and finally a CT scan. Uncle D and G-mom P came to visit and we spent much of the time in the family room working on a puzzle. We finally ate some dinner after 9 this evening and Mom is napping while we wait for wound care again. So. . . . .with all that being said, I am going to close for tonight. Oh, she is feeling better this evening but is really tired so we are both hoping for a good, no great nights sleep! Until tomorrow.